Sumary of AHA News: Son’s Scary Heart Defect Led Couple to Help Other Parents:
- 17, 2021 (American Heart Association News) — Linda and Clint Pilkinton had a healthy toddler when Linda got pregnant with their second child.
- Then the doctor said: “We think your son is going to be born with a congenital heart defect.
- ” Linda cried and Clint took her hand as the doctor explained their baby would be born with hypoplastic left heart syndrome, or HLHS, a rare defect in which a part of the heart is underdeveloped or not there at all.
- ” Children born with HLHS need a series of three open-heart surgeries.
- But “having a congenital heart defect is a lifelong journey,” Linda said.
- They established the Bright Heart Foundation to raise awareness about CHD, which affects approximately 40,000 newborns in the U.S. each year, and to give hope to families dealing with the day-to-day challenges of CHD.
- The organization connects families with needed resources, such as mental health services, and fills gaps in care such as a lack of benches or playmats used during occupational therapy.